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Trump Signs ‘Right to Try’ Act

<p>President Trump on Wednesday signed into law a bill giving&nbsp&semi;terminally ill patients the &&num;8220&semi;right to try&&num;8221&semi; treatments that have not been fully approved by the FDA&period;<&sol;p>&NewLine;<p>&&num;8220&semi;Thousands of terminally ill Americans will finally have hope&comma; and the fighting chance&comma; and I think it&&num;8217&semi;s going to be better than a chance&comma; that they will be cured&comma; they will be helped&comma; and be able to be with their families for a long time&comma; or maybe just for a longer time&comma;&&num;8221&semi; said Trump&period;&nbsp&semi;<&sol;p>&NewLine;<p>Among the terminally ill patients to attend the signing ceremony was Jordan McLinn&comma; an 8-year-old boy from Indiana who suffers from a degenerative genetic disease known as <em>Duchenne Muscular Dystrophy&period; <&sol;em>While recent advances have extended the life expectancy for DMD patients from the teen years into the early 30&rsquo&semi;s&comma; it is likely Jordan will be wheelchair-bound by his 12th birthday&period;&nbsp&semi;<&sol;p>&NewLine;<p>Experimental medications allowed by the <em>Right to Try Act<&sol;em> will give hope to people&comma; like Jordan&comma; who have no other option&period; Specifically&comma; the law gives terminally ill patients access to drugs that have passed &&num;8220&semi;Phase 1&&num;8221&semi; of the FDA&&num;8217&semi;s approval process&period;&nbsp&semi;The complete approval process currently takes between 3 and 10 years&period;&nbsp&semi;<&sol;p>&NewLine;<p>&&num;8220&semi;Right to try&&num;8221&semi; legislation has long been a priority for Trump&comma; GOP lawmakers&comma; and Vice President Mike Pence &&num;8211&semi; who signed a nearly identical law as Governor of Indiana in 2015&period; In his remarks at the signing ceremony&comma; Trump referred to the bill as &ldquo&semi;another promise to the American people&&num;8221&semi; and&nbsp&semi;thanked lawmakers Ron Johnson &lpar;R-WI&rpar;&comma; Joe Donnelly &lpar;D-IN&rpar;&comma; Brian Fitzpatrick &lpar;R-PA&rpar;&comma; and Michael Burgess &lpar;R-TX&rpar; for helping push the bill through Congress&period;<&sol;p>&NewLine;<p>&ldquo&semi;America has always been a nation of fighters who never gave up&comma; said Trump&period; &ldquo&semi;This is very personal for me&comma; as I proudly sign this bill&comma; thousands of terminals ill Americans will have the help&comma; the hope&comma; and the fighting chance that they will be cured&period;&rdquo&semi;<&sol;p>&NewLine;<p>&nbsp&semi;&&num;8212&semi;<&sol;p>&NewLine;<p>Lawmakers&&num;8217&semi; attempts to pass &&num;8220&semi;right to try&&num;8221&semi; legislation in past years have been stymied by&nbsp&semi;opponents&nbsp&semi;who worry&nbsp&semi;the new rule will create false hope&comma; allow quack doctors to profit&comma; interfere with FDA safeguards&comma; and cause harm to patients&period;<&sol;p>&NewLine;<p>&ldquo&semi;FDA oversight of access to experimental treatments exists for a reason &&num;8211&semi; it protects patients from potential snake oil salesmen or from experimental treatments that might do more harm than good&comma;&rdquo&semi; argues Rep&period; Frank Pallone Jr&period; &lpar;D-NJ&rpar;&period;<&sol;p>&NewLine;<p>The way I see it&comma; if any medication changes my prognosis from &&num;8220&semi;will die&&num;8221&semi; to &&num;8220&semi;might die&comma;&&num;8221&semi; sign me up&period;<&sol;p>&NewLine;<p><strong>Editor&&num;8217&semi;s note&colon;<&sol;strong> While this is certainly a dangerous&nbsp&semi; proposition for vulnerable patients&comma; every person has the right to try to stay alive in the face of certain death&period;&nbsp&semi;<&sol;p>&NewLine;

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