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Facebook Wants your Medical Records – Project on Hold Amid Privacy Concerns

<p>Facebook has decided to pause a patient data harvesting program it says was intended to help connect doctors with patients in need of specialized care&period;<&sol;p>&NewLine;<p>The decision&comma; announced Thursday&comma; comes amid increasing criticism regarding the Cambridge Analytica data leak scandal&period;<&sol;p>&NewLine;<p>The health research project&comma; led by Stanford cardiologist Freddy Abnousi&comma; aimed to combine anonymized medical data &lpar;provided by hospitals&rpar; with socioeconomic data &lpar;available on Facebook&rpar; to build profiles of people that would be used to improve treatment and care&period;<&sol;p>&NewLine;<p>Facebook had planned to use a technique called &ldquo&semi;hashing&rdquo&semi; to match individuals in both sets&period; Patient names and other identifiable information would have been obscured&comma; but left open to re-identification&period; Patient consent was not a factor in early discussions&period;&nbsp&semi;<&sol;p>&NewLine;<p>&ldquo&semi;The process would not attempt to provide health recommendations for specific people&comma;&rdquo&semi; a spokesperson told <em>The Verge<&sol;em>&period; &ldquo&semi;Instead&comma; the focus would be on processing general insights that would help medical professionals take social connectedness into account as they develop treatment or intervention programs for their patients&period;&rdquo&semi;<&sol;p>&NewLine;<p>Facebook spoke with major hospitals and medical groups about the project as recently as last month&comma; but decided to halt the program after the Cambridge Analytica incident raised public concerns about the network&rsquo&semi;s ability to protect the personal data of its users&period;&nbsp&semi;<&sol;p>&NewLine;<p>&ldquo&semi;For the first time in history&comma; people are sharing information about themselves online in ways that may help determine how to improve their health&comma;&rdquo&semi; says Cathleen Gates&comma; CEO of the American College of Cardiology&period;<&sol;p>&NewLine;<p>That may be true&comma; but the implications for personal privacy are staggering&period;&nbsp&semi;<&sol;p>&NewLine;<p>As former White House CTO and health policy expert Aneesh Chopra points out&comma; Facebook&rsquo&semi;s health program could have created serious problems if there was a breakdown in the privacy of the information&period; &ldquo&semi;Consumers wouldn&rsquo&semi;t have assumed their data would be used in this way&period; If Facebook moves ahead &lbrack;with its plans&rsqb;&comma; I would be wary of efforts that repurpose user data without explicit consent&period;&rdquo&semi;&nbsp&semi;<&sol;p>&NewLine;<p>Instead of poking its nose into your medical history&comma; Facebook will now focus on &ldquo&semi;other important work&rdquo&semi; such as &ldquo&semi;doing a better job of protecting people&rsquo&semi;s data and being clearer with them about how that data is used in our products and services&period;&rdquo&semi;<&sol;p>&NewLine;<p><strong>Author&rsquo&semi;s Note&colon;<&sol;strong> the collection of private medical data is completely inappropriate for a social media network&comma; but the real problem here lies with hospitals &&num;8211&semi; which do not have the right to share that kind of data&period;&nbsp&semi;<&sol;p>&NewLine;<p>&nbsp&semi;<&sol;p>&NewLine;

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